Wednesday, March 18, 2015

#BringingEllenDegeneresToEthan

This is a little similar to Ethans Life Story but has different music and pictures,and it's shorter.This is a video I made for Ellen degeneres about my Inspiration Ethan my beautiful special needs son. He's in excruciating pain sitting up due to his stomach and intestines being in Advanced Failure. I need Ellen's help to get him a bigger mini van with lots of leg room for him to stretch out and a more comfortable special needs car seat so he's comfortable when we(My Mom and I)drive him to Dr appointments. He makes my Life more beautiful just by him being in it,and I want to better his life for him by making his wish come true. Can you please share these videos so they reach Ellen? #BringingEllenDegeneresToEthan

Ethans Life Story

My Beautiful Special Needs Son is my Inspiration to never give up.He overcame so many challenges and still endures them today.He was born with a Rare Fatal Seizure Gene called, I.S.S.X gene Infantile,Spasms,Syndrome,X linked.He's blind,like a newborn baby,has one normal sized lung,and one baby size(1-2 ribs),His stomach and intestines are in Advanced Failure so he eats TPN through a broviac catheter which tunnels through a major artert near his heart which at times causes him to go into Septic Shock which is Fatal.He also has Chronic Asthma,and his Immune System is Severely Compromised causing him to get sick very easily when he's around sick people or in crowds,he also has a rare blood disorder in which his counts severely drop at times causing him to need a blood transfusion and sometimes also Platelets.He's Truly a Miracle  #BringEllenToEthan