Wednesday, March 18, 2015

Ethans Life Story

My Beautiful Special Needs Son is my Inspiration to never give up.He overcame so many challenges and still endures them today.He was born with a Rare Fatal Seizure Gene called, I.S.S.X gene Infantile,Spasms,Syndrome,X linked.He's blind,like a newborn baby,has one normal sized lung,and one baby size(1-2 ribs),His stomach and intestines are in Advanced Failure so he eats TPN through a broviac catheter which tunnels through a major artert near his heart which at times causes him to go into Septic Shock which is Fatal.He also has Chronic Asthma,and his Immune System is Severely Compromised causing him to get sick very easily when he's around sick people or in crowds,he also has a rare blood disorder in which his counts severely drop at times causing him to need a blood transfusion and sometimes also Platelets.He's Truly a Miracle  #BringEllenToEthan

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